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Welcome to The Lost Labia Chronicles - aka TLLC

Learn all about TLLC and the founder of TLLC, Jaclyn.

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Is TLLC for me?

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Are you newly diagnosed with lichen sclerosus and are overwhelmed by the amount of conflicting information on the Internet?

Are you looking for a trustworthy source to share evidence-based information about lichen sclerosus in a way that is easy to understand and digestible?

Has your mental health taken a hit since being diagnosed with LS?

Have you been hoping to find evidence-based information as well as sexual health and mental health support resources all in one place?

Do you want to feel seen and heard in your experience and struggles with lichen sclerosus?

Are you looking for a glimmer of hope in what can sometimes be a very dark and scary diagnosis?

Are you looking to empower yourself with information, find acceptance, and reclaim your life?

If you answered yes to any of the above, you are in the right place.

I created The Lost Labia Chronicles just for you!

What Exactly is TLLC?

TLLC was initially a blog, but it blossomed and grew into a content hub for lichen sclerosus information and support. This includes:

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Blog

Topics are either evidence-based information or lived-experience relating to sexual health and mental health.

Webinars & Workshops

II currently have a webinar on lichen sclerosus, stress, and the vagus nerve to help educate folks about stress and LS and provide them with tools to help decrease stress and manage symptoms.

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YouTube

Videos on all things lichen sclerosus. Short, evidence-based informational videos + mental/sexual health.

Image of a person with dark brown skin and short, dark brown hair wearing a yellow long sleeve shirt with a headset on at their computer. There is an opaque orange box with text that reads "1:1 Lichen Sclerosus Peer Support Call " in bold and "For more details go to my website or email/DM me".

1:1 LS Peer Support Calls

Due to demand, I offer 1:1 LS Peer support calls to help give you individualized advice, guidance, and support on your LS journey. Click on LS resources in the menu bar to learn more and book today.

The Grief Project

A collection of submissions from folks around the world with vulvar lichen sclerosus discussing grief & LS.

Dilator Ebook

I created this eBook specifically to help folks navigate using dilators with lichen sclerosus. There are many books on using dilators for painful sex, but none that focused on using them for lichen sclerosus.

LS Resources

I have a full page of LS resources, including educational and support resources, people to follow, crisis lines, and more.

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Free LS ebook

The revised edition is bigger and better than ever, with more evidence-based information, more guidance on how to choose a treatment plan that's right for you, how to build a support system and more.

Whether you prefer to read or watch your content, there is something for you! Take your time exploring all of the resources on my website.

Get my free Ls ebook: "Three Key Things you Need in Place with vulvar Lichen sclerosus".

Get your free copy today

If you’re newly diagnosed or looking for comprehensive work on lichen sclerosus, check out my FREE LS eBook, ‘Three Key Things you Need to Have in Place with Vulvar Lichen Sclerosus’. Please feel free to share it with your friends, family, and healthcare providers! Click the button to get your copy today!

Through TLLC, you can expect:

A safe space

TLLC works hard to create a safe and inclusive space for folks to land at any point in their LS journey. If there is something I can change to make the space more inclusive and safe for you, please email me.

Evidence-based information

The information shared on TLLC is evidence-based, unless I specify I am speaking from lived-experience.

stories from folks with Vulvar lichen sclerosus

At TLLC, you will hear stories from other folks with lichen sclerosus. This may be through a guest blog post or through The Grief Project.

Acceptance

One of my goals in creating TLLC is to help folks empower themselves with information, find acceptance, and help reclaim their lives.

LS tips and tricks

Whether its a blog post, a video, or a support call, TLLC shares a bunch of tips and tricks for managing symptoms and your mental/sexual health with lichen sclerosus.

Support & Guidance on your LS journey

Through my LS support resources page and my 1:1 LS peer support calls, TLLC aims to help you feel supported as you move through your LS journey. I also co-host free virtual meetups and share support resources on my website.

The Face Behind TLLC - CEO & Founder

Jaclyn

I was born in Montreal, Quebec, Canada, and remained there until I was about 23 (you'll learn quickly I am awful with dates, and I often am giving my best guess).

During my undergrad, I became fascinated by empirically-engaged philosophy of the mind.

With this, I moved to London, Ontario, Canada, afterward to pursue grad school where I received my Ph.D. in philosophy of neuroscience.

My Ph.D. focused on evaluating scientific methods and protocols to see whether we can trust the conclusions coming from scientific papers. I now use the skills I fostered during my time in graduate school to help me go through and evaluate the medical literature on lichen sclerosus.

During my time in graduate school, I volunteered on the phone for a sexual assault and crisis line at ANOVA. I am also on the board of Lichen Sclerosus Support Network, the steering committee of CORALS – Core Outcomes for Research in Lichen Sclerosus – as a patient representative, and am incredibly active in LS and gynecological spaces. I am very active in the LS medical space and the LS community at large.

Fun Facts About Me – Because We Are So Much More Than Our Diagnosis

I’m a Taurus, 35 years old, and I live with my amazing husband in Toronto, Canada. You'll see him featured in some of my videos on Lichen Sclerosus, sex, intimacy, and relationships on my YouTube channel.

I’m into fitness (weightlifting, yoga, Pilates, swimming, hiking), nature, camping, eating delicious plant-based food, and meditation. Of course, I love to write!

When I'm not outside being active or writing, I can be found watching anime (notable favorites are Demon Slayer, Death Note, Jujitsu Kaisen, Naruto, Bleach, etc.) and drag (especially Dragula & going to local drag artists). I can also be found browsing local art museums and trying to find the best latte in TO.

 

How it all started

I was diagnosed with vulvar Lichen Sclerosus in 2019; if you want to learn more about my diagnosis story, click here to watch my video. I was given next to no information about Lichen Sclerosus, and further, I didn't know anyone else with it. In November 2020, I attended a Lichen Sclerosus Virtual Meetup, hosted by Kathy, from Lichen Sclerosus Podcast.

This was a pivotal day for me. Finally, after years of feeling alone, I felt seen. I had an opportunity to be a part of a community.

Shortly after, I joined the LS warriors, a membership off social media that has events, videos, classes, check-ins, etc. I emersed myself fully in the membership, and, as time went on, I recognized a deep passion within myself to write about and explore various themes relating to Lichen Sclerosus.

In January 2021, Kathy asked us to write our goals for the year. One of mine was to start writing about Lichen Sclerosus – everyone in the group joked I'd write a book one day (and hey, maybe I will). Shortly after, Kathy graciously offered me a space on her website to host a blog; I instantly took her up on it and got to work.

Finally, in March 2021 I launched The Lost Labia Chronicles on her website and started my Instagram account. I slowly but steadily grew my following, and in September 2021 I started the YouTube channel. And now, here I am, with my first-ever website. A huge thank you to Kathy for her love, mentorship, and for believing in me from day one.

 

TLLC Testimonials

“Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. I am often surprised that she captures what has been on my mind. Her generosity in sharing her personal journey and speaking truthfully about LS provides much-needed hope and perspective”
- Joanne
"I have been reading ‘TLLC’ right from the beginning (March 2021). I have gained so much valuable knowledge, information, and helpful tips from reading these blogs. Jaclyn covers many topics and explains things in a way that’s so easy to understand. Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. Jaclyn has surpassed her mission which is to provide support and hope to those with LS."
- Maria
“I was diagnosed with LS in July 2022. I had never heard of the disease and was flailing around in the dark. I couldn’t get a gynecology or dermatology appointment and had no clue how to treat the LS or make myself more comfortable. Thank goodness I found Jaclyn‘s website and was able to do several one-on-one calls with her. Jaclyn literally saved my life and helped keep my mental state afloat. She shared her expertise and vast knowledge generously and was thoughtful, kind, and compassionate all the time. Jaclyn is absolutely superb at what she does and was literally the best support I found. It was a fantastic experience and a privilege to meet her."
- Adele
Image of three people from behind, walking down a street with apartments and trees, and the sun radiating down the street. The person on the left has dark hair and skin, a white top, and dark blue jeans. The person in the middle has brown hair and brown skin and is wearing a grey tank top and light blue jeans. The person on the left has blondish hair, white skin, and a flannel skirt. The three people have their arms around each other representing the importance of community when you have Lichen Sclerosus.

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