I decided to create The Grief Project back in June 2021. I wanted to create a space for people with Lichen Sclerosus to openly write about and share their experiences with grief.
This is a topic we do not hear much about, but it is something that touches almost everyone with Lichen Sclerosus in some capacity or another. I wanted this to be a part of The Lost Labia Chronicles, but make it a separate project to truly give space to others to share their stories.
I opened up a call on my social media and to the folks in the LS Warriors membership to share their experiences with grief and contribute to this collection of voices. If you want to contribute to the project, please reach out to me (my contact information is at the end of this).
Without further ado, let me introduce you to our anonymous poet. She is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.
One day, I received an email from her. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.
Without further ado, here are her poems.
Touch me softly;
Unjudging of the livid pupura,
The pallor of the scars.
See where the delicate nub of me
Lies sealed within its hood,
Retreating in shock
From the inimical everyday cloth,
And all things brushing, pushing, past it.
Gently trace the remnants of my inner lips
With tender fingers,
Soothing the discomfort.
Cup your palm
Around the aching, damaged
Beauty that lies at the heart of me:
For it is lovely in its brokenness-
A worn and shattered shell of
Delicate, rainbow colours,
Cast up upon the beach.
The dorsal recumbent position
Allows easy access
To vulva and vagina.
Drop your knickers,
Spread your legs
And all will be revealed.
Try not to tense
Against the gentle probing of the gloved fingers,
Penetrating
Without desire or affection.
Try not to wince
As they push past
Tears and tiny, scarce-seen ulcers.
Try not to cry
At the remarking upon the
Fusion and the scarring –
The crumbling architecture
That is filled with pain and inflammation.
Honor and witness the voices and experiences of others on their lichen sclerosus journeys. Through the power of art – in this case, writing/storytelling – we can soften a place within us that opens up to healing.
Click to learn more about and honor Ellen Swanborn-de Lange the work she did for…
Grief is a big part of processing a lichen sclerosus diagnosis. The grief project highlights…
Hey, beautiful soul. Let me ask you something. Does it burn when you urinate with…
Have you ever used a product on your vulva and ended up having a bad…
In this post, I reflect on my over a 10-year journey to get a diagnosis.…
Living with lichen sclerosus can impact your sexual health. Its impact may be mild to…