In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
Click to learn more about and honor Ellen Swanborn-de Lange the work she did for the lichen sclerosus community.
Grief is a big part of processing a lichen sclerosus diagnosis. The grief project highlights stories from across the globe. Read more here.
Hey, beautiful soul. Let me ask you something. Does it burn when you urinate with lichen sclerosus? Do you dread going to the bathroom in anticipation of the stinging pain? If so, you are not alone. I used to struggle with this and I know many folks with vulvar lichen sclerosus who do as well. In this post, I will be discussing urinary issues with lichen sclerosus. Specifically, I will address why it can burn/string when you urinate and I will share some helpful tips to help manage the pain when urinating.
Have you ever used a product on your vulva and ended up having a bad reaction to the product? Maybe you experienced new redness, pain, and itch after using a new emollient the internet was raving about? If so, you are not alone. Many vulvar products can cause an allergic reaction or contact dermatitis. In this post, I discuss the types of vulvar products you may use if you have lichen sclerosus, what a patch test is, the importance of patch tests, and why they are so important.
In this post, I reflect on my over a 10-year journey to get a diagnosis. I then share why I think it took so long for me to get my diagnosis, including ill-informed doctors, lack of awareness, not knowing my anatomy, and not looking at my vulva.
Living with lichen sclerosus can impact your sexual health. Its impact may be mild to severe. In my last post, I discussed the myriad of ways my sexual health suffered from lichen sclerosus and how working with a sex therapist helped. Many folks haven’t heard of sex therapy before and have asked me for advice on finding one. In this post, I’m going to share what a sex therapist is, how to find one, the importance of vetting your sex therapist and starting therapy.
Do you feel like your sexual identity took a massive hit after being diagnosed with LS? Perhaps you struggle with low-self confidence because of anatomical changes to your body. If so, you are not alone. I felt all of this and more in the first year of my lichen sclerosus journey. In this post, I discuss what motivated me to get a sex therapist after being diagnosed with lichen sclerosus. Then, I share how working with a sex therapist helped my physical and mental health.
“what kind of doctor should I see for my lichen sclerosus”? Great question! In this blog post, I review what lichen sclerosus is, what doctors diagnose and treat it, and which kind of doctor you should see to follow your case.
In this guest post, Jen shares her story about living with lichen sclerosus and trauma. It is a reflective piece on the nature of trauma and how it impacts lichen sclerosus. If it feels safe and supportive to your journey, take a couple of minutes to read through this powerful and moving piece.
The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.
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