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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

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Image of a desk with a succulent, a candle, and a person writing in a gratitude journal. The background is a pale purple.

Gratitude Journaling: A Secret to Accepting Lichen Sclerosus

In this post, I continue on the topic of mental health and Lichen Sclerosus, but instead of focusing on a particular emotion, I will discuss how writing in a gratitude journal can make your journey with Lichen Sclerosus a little bit lighter. I begin by discussing the events that led to my hitting rock bottom, why I started to write in a gratitude journal, and how it can help you when processing living with Lichen Sclerosus.

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Jaclyn January 4, 2022
Image of two people with brown skin and brown hair sitting and laughing and talking with each other. The image is set amongst a pale purple background.

Coming Out To Others With Lichen Sclerosus

Do you feel alone and isolated because of your Lichen Sclerosus? Do you want to share with others that you have Lichen Sclerosus but have no idea where to start? In this post, I share some of the pros and cons associated with telling others about LS, and provide tips and tricks for how to start the conversation, if and when you are ready.

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Jaclyn December 7, 2021
Image of a cream colored background with a beautiful wreath of pink and orange flowers. In the middle, soft black cursive writing says: "The Grief Project: Louise's Story" in the middle of the wreath.

The Grief Project: Louise’s Story

Read the latest contribution to The Grief Project by a fellow LS warrior, Louise. Louise is an incredibly gifted writer and takes us through her journey of grief, sadness, and growth.

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Jaclyn December 2, 2021
A graphic saying 'ups' and 'downs' amongst a pale purple background.

Progress Isn’t Linear: The Unexpected Reality of Progress

In this post, I want to focus on a more abstract aspect of mental health that you may struggle with. It is an aspect that is harder to articulate than anger or fear, but it is incredibly important to discuss, nonetheless. That is, I will be discussing expectations about progress with Lichen Sclerosus. If you’ve ever found yourself saying, “why am I not better yet”, “why isn’t this working”, “other people seem to get relief faster, why am I still in pain”, “I feel better physically, but the mental effects of this disease are still tearing me apart and I know I should be better by now”, etc., then this post is definitely for you. 

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Jaclyn November 23, 2021
Image of a person writing down in a notebook, representing the concept of education and learning. The background is a pale purplee.

Fear and the Power of Education Pt. 2

My first post about fear highlighted various fears you can experience after getting diagnosed with and processing a Lichen Sclerosus diagnosis. Some of those fears included fears about relationships and sex, fears about developing vulvar cancer, and fear of the unknown. You can read about this here. In my follow-up piece, I discussed fears relating to sex and current/future relationships and provide some practical advice (checklist-style) to help lower the volume of those fears, read that piece here. In today’s post, I tackle the fear of developing vulvar cancer and the fear of the unknown. The main theme with this post and last week’s post is the power of education and how empowering ourselves can help ease our worries and fears.

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Jaclyn October 26, 2021
Image of a multicolored brain sketch, surrounded by different objects like pens, pencils, erasers, notebooks, etc. representing learning and education. The background is a pale purple.

Fear and the Power of Education

This post focuses on the fear surrounding relationships and sex. Part two explores the physical fears a Lichen Sclerosus diagnosis can bring up, like the fear of developing vulvar cancer.

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Jaclyn October 12, 2021
The title text reads: "The Grief Project: Jen's Story" in black cursive font. Underneath is a wreath of pink and yellow flowers with green leaves.

The Grief Project: Jen’s Story

This week on The Grief Project we have Jen, a fellow LS warrior, who will be discussing her journey with grief from Lichen Sclerosus, a traumatic birthing experience, and episiotomy scar endometriosis. Jen is one hell of a woman, she has faced some serious hardships and beat them all.

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Jaclyn September 30, 2021
Image of a person pulling up a black sweater over their face in fear. The background is a pale purple.

The Paralyzing Strength of Fear When You Have Lichen Sclerosus

In this post, I highlight some of the fears you may experience. I end with a call to normalize having these fears and all of the emotions we feel. In my next post, I provide practical suggestions for managing your fears with Lichen Sclerosus. Importantly, this advice is given in a way that doesn’t invalidate or attempt to completely eliminate how you feel.

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Jaclyn September 28, 2021
Title text reads: "The Grief Project: Paulina's Journey" in black cursive font. Underneath is a graphic of pink, purple, and yellow flowers with green leaves.

The Grief Project: Paulina’s Journey

Without further ado, let me introduce you to Paulina, a beautiful soul living in Germany. Paulina has been a part of the Lichen Sclerosus Support Virtual Meetups for quite a while now, and also speaks with such strength, asks wonderful questions, and gives great support to others. Thus, I will now turn the metaphorical floor over to her.

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Jaclyn September 22, 2021
Image of a a person with their hand on their face, with a grief struck look on their face. They have pale skin, white hair, and wear a blue top. The background is a pale purple.

Grief: The Forgotten Feeling of Living with Lichen Sclerosus

Today, I want to touch on another aspect of mental health that often accompanies living with Lichen Sclerosus: that is, grief. Grief is a multifaceted feeling and can present itself in several different ways. In this post, I will discuss how grief can manifest and why grief is normal when you have Lichen Sclerosus.

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Jaclyn September 14, 2021

I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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