In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
Grief is a big part of processing a lichen sclerosus diagnosis. The grief project highlights stories from across the globe. Read more here.
The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.
Gina is a fellow LS Warrior whom I had the pleasure of meeting (virtually) over a year ago at one of the Lichen Sclerosus Support Virtual Meetups. Her warmth radiated through the screen. She was such a beacon of light in uplifting others on the call and has always been incredibly honest and transparent about her lichen sclerosus journey. When she reached out to me to add her poetry to The Grief Project, I was overjoyed. When I read her words, my eyes filled with tears. I was deeply moved by her poetry; I felt her words in my body and soul. Gina has such an incredible talent for conveying complex experiences such as grief with LS through poetry.
In the latest installment of The Grief Project, Denise bears their soul and opens up about their diagnosis story and the grief lichen sclerosus led to.
Without further ado, let me introduce you to our latest warrior. Anonymous is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.
One day, I received an email from anonymous. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.
Introduction A few weeks ago, I had the pleasure of sitting down and interviewing an amazingly brave soul. We had a great conversation about
A few weeks ago I had the pleasure of (virtually) sitting down with a friend and fellow LS warrior, Megan to discuss her journey with Lichen Sclerosus and grief. We had this conversation interview style, and what follows is a transcription of our talk. Megan is an incredibly brave, intelligent, and strong LS warrior whom I have had the pleasure of getting to know over the last year. She’s come a long way on her difficult LS journey, and I’m so proud of her.
Read the latest contribution to The Grief Project by a fellow LS warrior, Louise. Louise is an incredibly gifted writer and takes us through her journey of grief, sadness, and growth.
This week on The Grief Project we have Jen, a fellow LS warrior, who will be discussing her journey with grief from Lichen Sclerosus, a traumatic birthing experience, and episiotomy scar endometriosis. Jen is one hell of a woman, she has faced some serious hardships and beat them all.
Without further ado, let me introduce you to Paulina, a beautiful soul living in Germany. Paulina has been a part of the Lichen Sclerosus Support Virtual Meetups for quite a while now, and also speaks with such strength, asks wonderful questions, and gives great support to others. Thus, I will now turn the metaphorical floor over to her.
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