In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
In this post, I reflect on my over a 10-year journey to get a diagnosis. I then share why I think it took so long for me to get my diagnosis, including ill-informed doctors, lack of awareness, not knowing my anatomy, and not looking at my vulva.
In this guest post, Jen shares her story about living with lichen sclerosus and trauma. It is a reflective piece on the nature of trauma and how it impacts lichen sclerosus. If it feels safe and supportive to your journey, take a couple of minutes to read through this powerful and moving piece.
The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.
Gina is a fellow LS Warrior whom I had the pleasure of meeting (virtually) over a year ago at one of the Lichen Sclerosus Support Virtual Meetups. Her warmth radiated through the screen. She was such a beacon of light in uplifting others on the call and has always been incredibly honest and transparent about her lichen sclerosus journey. When she reached out to me to add her poetry to The Grief Project, I was overjoyed. When I read her words, my eyes filled with tears. I was deeply moved by her poetry; I felt her words in my body and soul. Gina has such an incredible talent for conveying complex experiences such as grief with LS through poetry.
In the latest installment of The Grief Project, Denise bears their soul and opens up about their diagnosis story and the grief lichen sclerosus led to.
Since you were diagnosed with Lichen Sclerosus, have you ever given yourself a timeline to get better? Perhaps you gave yourself timelines concerning seeing relief from your medication, getting out of a flare, to getting into remission? Have you given yourself timelines and expectations for when you will be able to have sex again? Have these timelines caused you mental distress? Did you feel even more depressed and discouraged than you were when you initially set the timeline? If so, this post is for you!
Introduction A few weeks ago, I had the pleasure of sitting down and interviewing an amazingly brave soul. We had a great conversation about
A few weeks ago I had the pleasure of (virtually) sitting down with a friend and fellow LS warrior, Megan to discuss her journey with Lichen Sclerosus and grief. We had this conversation interview style, and what follows is a transcription of our talk. Megan is an incredibly brave, intelligent, and strong LS warrior whom I have had the pleasure of getting to know over the last year. She’s come a long way on her difficult LS journey, and I’m so proud of her.
In this post, I continue on the topic of mental health and Lichen Sclerosus, but instead of focusing on a particular emotion, I will discuss how writing in a gratitude journal can make your journey with Lichen Sclerosus a little bit lighter. I begin by discussing the events that led to my hitting rock bottom, why I started to write in a gratitude journal, and how it can help you when processing living with Lichen Sclerosus.
Do you feel alone and isolated because of your Lichen Sclerosus? Do you want to share with others that you have Lichen Sclerosus but have no idea where to start? In this post, I share some of the pros and cons associated with telling others about LS, and provide tips and tricks for how to start the conversation, if and when you are ready.
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