In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
Grief is a big part of processing a lichen sclerosus diagnosis. The grief project highlights stories from across the globe. Read more here.
Hey, beautiful soul. Let me ask you something. Does it burn when you urinate with lichen sclerosus? Do you dread going to the bathroom in anticipation of the stinging pain? If so, you are not alone. I used to struggle with this and I know many folks with vulvar lichen sclerosus who do as well. In this post, I will be discussing urinary issues with lichen sclerosus. Specifically, I will address why it can burn/string when you urinate and I will share some helpful tips to help manage the pain when urinating.
Living with lichen sclerosus can impact your sexual health. Its impact may be mild to severe. In my last post, I discussed the myriad of ways my sexual health suffered from lichen sclerosus and how working with a sex therapist helped. Many folks haven’t heard of sex therapy before and have asked me for advice on finding one. In this post, I’m going to share what a sex therapist is, how to find one, the importance of vetting your sex therapist and starting therapy.
The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.
Do you have an upcoming vulvar biopsy scheduled? Are you worried about what the biopsy will involve and how you will recover? Do you want some tips and tricks to help set you up for success? If so, you have come to the right place. In today’s post, I’m sharing tips for before, during, and after your vulvar biopsy.
Health anxiety is common in folks with chronic health conditions, including lichen sclerosus. stress management, cognitive behavioral therapy, and medication for health anxiety. I speak both from lived experience and from evidence-based information for psychology papers.
Today, I break from the diary-style entry blogs of my week-to-week experience with dilators. Instead, I focus more on the dynamic between my husband and me during this process, how he helped me, and I share a super intimate and vulnerable moment.
Gina is a fellow LS Warrior whom I had the pleasure of meeting (virtually) over a year ago at one of the Lichen Sclerosus Support Virtual Meetups. Her warmth radiated through the screen. She was such a beacon of light in uplifting others on the call and has always been incredibly honest and transparent about her lichen sclerosus journey. When she reached out to me to add her poetry to The Grief Project, I was overjoyed. When I read her words, my eyes filled with tears. I was deeply moved by her poetry; I felt her words in my body and soul. Gina has such an incredible talent for conveying complex experiences such as grief with LS through poetry.
In the latest installment of The Grief Project, Denise bears their soul and opens up about their diagnosis story and the grief lichen sclerosus led to.
Without further ado, let me introduce you to our latest warrior. Anonymous is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.
One day, I received an email from anonymous. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.
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