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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

Image of a person with tan skin and short brown hair sitting on a couch looking emotional with a sex therapist sitting across from them.

How to Find a Sex Therapist for Lichen Sclerosus

Living with lichen sclerosus can impact your sexual health. Its impact may be mild to severe. In my last post, I discussed the myriad of ways my sexual health suffered from lichen sclerosus and how working with a sex therapist helped. Many folks haven’t heard of sex therapy before and have asked me for advice on finding one. In this post, I’m going to share what a sex therapist is, how to find one, the importance of vetting your sex therapist and starting therapy.

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Image of a person with shoulder length brown hair, a white top, and jeans, sitting on a brown chair. Across from this person is another person with brown skin, a grey shirt, sitting on a blue couch with a potted plant next to it. This image represents a patient and a sex therapist discussing sexual health and lichen sclerosus.

LS, Sexual Health, & the Importance of Sex Therapy

Do you feel like your sexual identity took a massive hit after being diagnosed with LS? Perhaps you struggle with low-self confidence because of anatomical changes to your body. If so, you are not alone. I felt all of this and more in the first year of my lichen sclerosus journey. In this post, I discuss what motivated me to get a sex therapist after being diagnosed with lichen sclerosus. Then, I share how working with a sex therapist helped my physical and mental health.

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Image of two people hugging each other, bonding over living with ls and trauma and knowing how hard it can be.

Guest Post: How are Trauma and Lichen Sclerosus Connected?

In this guest post, Jen shares her story about living with lichen sclerosus and trauma. It is a reflective piece on the nature of trauma and how it impacts lichen sclerosus. If it feels safe and supportive to your journey, take a couple of minutes to read through this powerful and moving piece.

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A gold and pink wreath of flowers forms a circle in the middle of an image with a cream-colored background. In the middle of the wreath, italic black text reads "The Grief Project: Pernille's Story".

The Grief Project: Pernille’s Story

The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.

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Image of medical supplies on a desk with the word 'anxiety' in a black cursive font next to it, representing the concept of health anxiety and lichen sclerosus.

How to Deal with Health Anxiety and Lichen Sclerosus

Health anxiety is common in folks with chronic health conditions, including lichen sclerosus. stress management, cognitive behavioral therapy, and medication for health anxiety. I speak both from lived experience and from evidence-based information for psychology papers.

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Image of a medical office, with a person in a long white lab coat at the forefront. The background is a pale purple.

Health Anxiety: How It Impacts Lichen Sclerosus

The topic of this post is health anxiety and how it can affect folks with lichen sclerosus. I being by explaining what health anxiety is, including its perceptual, cognitive, and behavioral components. After, I dive into the ways in which health anxiety can manifest with lichen sclerosus and then share my experience with health anxiety.

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Image of a wreath of pink and purple flowers amongst a cream background. In black, italic font, text reads: "The Grief Project: Poems by Gina".

The Grief Project: Poems by Gina

Gina is a fellow LS Warrior whom I had the pleasure of meeting (virtually) over a year ago at one of the Lichen Sclerosus Support Virtual Meetups. Her warmth radiated through the screen. She was such a beacon of light in uplifting others on the call and has always been incredibly honest and transparent about her lichen sclerosus journey. When she reached out to me to add her poetry to The Grief Project, I was overjoyed. When I read her words, my eyes filled with tears. I was deeply moved by her poetry; I felt her words in my body and soul. Gina has such an incredible talent for conveying complex experiences such as grief with LS through poetry.

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Image of two people holding hands in a field, amongst a pale purple background.

My Dilator Journey, Part 4

Today, I talk about my dilator journey for weeks 7 & 8. This post will be TMI, so if that’s not your thing, click out. For example, it will include discussions about oral sex, masturbation, lube, etc. In addition to highlighting the physical aspects of my journey, I document how working with dilators affected my mental health. I had a pretty big mental health breakthrough this week, and I can’t wait to share this with you.

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Image of a person walking down a very long beach. This represents my dilator journey. The background is a pale purple.

My Dilator Journey, Part 3

In this post, I continue my dilator journey from weeks 5 and 6. I highlight the physical and mental aspects of the journey. I discuss some setbacks I experienced and how I dealt with those.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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