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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

Image of two people with brown skin and brown hair sitting and laughing and talking with each other. The image is set amongst a pale purple background.

Coming Out To Others With Lichen Sclerosus

Do you feel alone and isolated because of your Lichen Sclerosus? Do you want to share with others that you have Lichen Sclerosus but have no idea where to start? In this post, I share some of the pros and cons associated with telling others about LS, and provide tips and tricks for how to start the conversation, if and when you are ready.

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Image of a multicolored brain sketch, surrounded by different objects like pens, pencils, erasers, notebooks, etc. representing learning and education. The background is a pale purple.

Fear and the Power of Education

This post focuses on the fear surrounding relationships and sex. Part two explores the physical fears a Lichen Sclerosus diagnosis can bring up, like the fear of developing vulvar cancer.

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Image of a person pulling up a black sweater over their face in fear. The background is a pale purple.

The Paralyzing Strength of Fear When You Have Lichen Sclerosus

In this post, I highlight some of the fears you may experience. I end with a call to normalize having these fears and all of the emotions we feel. In my next post, I provide practical suggestions for managing your fears with Lichen Sclerosus. Importantly, this advice is given in a way that doesn’t invalidate or attempt to completely eliminate how you feel.

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Title text reads: "The Grief Project: Paulina's Journey" in black cursive font. Underneath is a graphic of pink, purple, and yellow flowers with green leaves.

The Grief Project: Paulina’s Journey

Without further ado, let me introduce you to Paulina, a beautiful soul living in Germany. Paulina has been a part of the Lichen Sclerosus Support Virtual Meetups for quite a while now, and also speaks with such strength, asks wonderful questions, and gives great support to others. Thus, I will now turn the metaphorical floor over to her.

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Image of a person in a yellow shirt and dark skin with their hands in an "X" position. The title text reads: "When To Step Back From Dilators" in black at the bottom of the page.

When To Step Back From Dilators

In this post, I share more from my journey with dilators. Specifically, I touch on when i realized I needed to take a break from dilators, and advice for when you may similarly need to step back.

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Image of 5 vaginal dilators size small to large laid out on a white table. The dilators are pink and have a loop hole at the base. The background is a pale blue and the title test reads " Introduction to Dilators: The Basics " in black at the bottom of the image.

Introduction to Dilators: The Basics

In this post, I introduce dilators and my experience with them. I touch on what they are, how I was instructed to use them, and my experience using them with my pelvic floor physiotherapist.

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Image of a person sitting on a green medicine ball while a physiotherapist guides them through an exercise on the ball. The background is a pale blue and the text reads: "Pelvic Floor Physiotherapy for Painful Sex" in black at the bottom.

Physiotherapy for Painful Sex

This post looks at my first appointment with a pelvic floor physiotherapist for my Lichen Sclerosus and painful sex. I discuss how to find a pelvic floor physiotherapist, what to expect during the appointment, and important things I learned.

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Image of a person from the back with someone's hands removing their bra. The title text reads : "Whose Sex Life is Better?" in black at the bottom.

Whose Sex Life is Better?

In this post, I focus on the functional aspect of the vulva and vagina, namely, their ability for sexual function and pleasure. I discuss the mental health aspect of comparing your sex life to those of others and how to help overcome it.

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Image of a person hugging a pillow, looking upset. The background is a pale blue, and the title: "Painful Sex: The Journey of my LS Diagnosis" is in black text at the bottom.

Painful Sex: The Journey of my LS Diagnosis

In this post, I dive into the details of my diagnosis and what it entailed. I highlight some of my red flags (i.e., painful sex). I discuss when and how painful sex started for me, how I dealt with it mentally and physically, and how I finally got diagnosed.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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