The Grief Project: Story by an Anonymous LS Warrior
Introduction A few weeks ago, I had the pleasure of sitting down and interviewing an amazingly brave soul. We had a great conversation about
In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
Introduction A few weeks ago, I had the pleasure of sitting down and interviewing an amazingly brave soul. We had a great conversation about
Do you feel alone and isolated because of your Lichen Sclerosus? Do you want to share with others that you have Lichen Sclerosus but have no idea where to start? In this post, I share some of the pros and cons associated with telling others about LS, and provide tips and tricks for how to start the conversation, if and when you are ready.
This post focuses on the fear surrounding relationships and sex. Part two explores the physical fears a Lichen Sclerosus diagnosis can bring up, like the fear of developing vulvar cancer.
In this post, I highlight some of the fears you may experience. I end with a call to normalize having these fears and all of the emotions we feel. In my next post, I provide practical suggestions for managing your fears with Lichen Sclerosus. Importantly, this advice is given in a way that doesn’t invalidate or attempt to completely eliminate how you feel.
Without further ado, let me introduce you to Paulina, a beautiful soul living in Germany. Paulina has been a part of the Lichen Sclerosus Support Virtual Meetups for quite a while now, and also speaks with such strength, asks wonderful questions, and gives great support to others. Thus, I will now turn the metaphorical floor over to her.
In this post, I share more from my journey with dilators. Specifically, I touch on when i realized I needed to take a break from dilators, and advice for when you may similarly need to step back.
In this post, I introduce dilators and my experience with them. I touch on what they are, how I was instructed to use them, and my experience using them with my pelvic floor physiotherapist.
This post looks at my first appointment with a pelvic floor physiotherapist for my Lichen Sclerosus and painful sex. I discuss how to find a pelvic floor physiotherapist, what to expect during the appointment, and important things I learned.
In this post, I focus on the functional aspect of the vulva and vagina, namely, their ability for sexual function and pleasure. I discuss the mental health aspect of comparing your sex life to those of others and how to help overcome it.
In this post, I dive into the details of my diagnosis and what it entailed. I highlight some of my red flags (i.e., painful sex). I discuss when and how painful sex started for me, how I dealt with it mentally and physically, and how I finally got diagnosed.
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