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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

A gold and pink wreath of flowers forms a circle in the middle of an image with a cream-colored background. In the middle of the wreath, italic black text reads "The Grief Project: Pernille's Story".

The Grief Project: Pernille’s Story

The Grief Project is a collection of voices from people around the world with Lichen Sclerosus, sharing their experiences and journey with grief after their LS diagnosis. Today, we have a deeply moving piece by Pernille, who shares their journey with grief and lichen sclerosus. Pernille has been through a lot, and I think many parts of her story will resonate with you. I’m so grateful this brave soul opened up and shared with us.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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