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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

Image of a person with tan skin and short brown hair sitting on a couch looking emotional with a sex therapist sitting across from them.

How to Find a Sex Therapist for Lichen Sclerosus

Living with lichen sclerosus can impact your sexual health. Its impact may be mild to severe. In my last post, I discussed the myriad of ways my sexual health suffered from lichen sclerosus and how working with a sex therapist helped. Many folks haven’t heard of sex therapy before and have asked me for advice on finding one. In this post, I’m going to share what a sex therapist is, how to find one, the importance of vetting your sex therapist and starting therapy.

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Image of a person with shoulder length brown hair, a white top, and jeans, sitting on a brown chair. Across from this person is another person with brown skin, a grey shirt, sitting on a blue couch with a potted plant next to it. This image represents a patient and a sex therapist discussing sexual health and lichen sclerosus.

LS, Sexual Health, & the Importance of Sex Therapy

Do you feel like your sexual identity took a massive hit after being diagnosed with LS? Perhaps you struggle with low-self confidence because of anatomical changes to your body. If so, you are not alone. I felt all of this and more in the first year of my lichen sclerosus journey. In this post, I discuss what motivated me to get a sex therapist after being diagnosed with lichen sclerosus. Then, I share how working with a sex therapist helped my physical and mental health.

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Image of two people in bed together amongst a pale purple background.

An Unexpected Turn in My Dilator Journey

Today, I break from the diary-style entry blogs of my week-to-week experience with dilators. Instead, I focus more on the dynamic between my husband and me during this process, how he helped me, and I share a super intimate and vulnerable moment.

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Image of two people holding hands in a field, amongst a pale purple background.

My Dilator Journey, Part 4

Today, I talk about my dilator journey for weeks 7 & 8. This post will be TMI, so if that’s not your thing, click out. For example, it will include discussions about oral sex, masturbation, lube, etc. In addition to highlighting the physical aspects of my journey, I document how working with dilators affected my mental health. I had a pretty big mental health breakthrough this week, and I can’t wait to share this with you.

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Image of a person walking down a very long beach. This represents my dilator journey. The background is a pale purple.

My Dilator Journey, Part 3

In this post, I continue my dilator journey from weeks 5 and 6. I highlight the physical and mental aspects of the journey. I discuss some setbacks I experienced and how I dealt with those.

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Image of hands holding a bunch of mulitcolored lights against a purple background.

Working with Dilators: Why I Started Again

This post will be part of a four-part series on my journey with dilators. I will detail my experience each week, in a quasi-journal entry format. I am sharing my journey in the hopes that it will help you in your journey. This series will be a vulnerable and honest journaling of what I did and how I felt mentally on my dilator journey.

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Image of a bunch of pink and purple watercolor painting flowers taking up the middle and lower right edges. In the middle, in black cursive font reads" The Grief Project: Poems by an anonymous LS warrior" in the middle of the image. The background is a calming cream color.

The Grief Project: Poems by an Anonymous LS Warrior

Without further ado, let me introduce you to our latest warrior. Anonymous is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.

One day, I received an email from anonymous. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.

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Image of a multicolored brain sketch, surrounded by different objects like pens, pencils, erasers, notebooks, etc. representing learning and education. The background is a pale purple.

Fear and the Power of Education

This post focuses on the fear surrounding relationships and sex. Part two explores the physical fears a Lichen Sclerosus diagnosis can bring up, like the fear of developing vulvar cancer.

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Image of a person pulling up a black sweater over their face in fear. The background is a pale purple.

The Paralyzing Strength of Fear When You Have Lichen Sclerosus

In this post, I highlight some of the fears you may experience. I end with a call to normalize having these fears and all of the emotions we feel. In my next post, I provide practical suggestions for managing your fears with Lichen Sclerosus. Importantly, this advice is given in a way that doesn’t invalidate or attempt to completely eliminate how you feel.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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