In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.
In this post, I reflect on my over a 10-year journey to get a diagnosis. I then share why I think it took so long for me to get my diagnosis, including ill-informed doctors, lack of awareness, not knowing my anatomy, and not looking at my vulva.
Living with lichen sclerosus can impact your sexual health. Its impact may be mild to severe. In my last post, I discussed the myriad of ways my sexual health suffered from lichen sclerosus and how working with a sex therapist helped. Many folks haven’t heard of sex therapy before and have asked me for advice on finding one. In this post, I’m going to share what a sex therapist is, how to find one, the importance of vetting your sex therapist and starting therapy.
Do you feel like your sexual identity took a massive hit after being diagnosed with LS? Perhaps you struggle with low-self confidence because of anatomical changes to your body. If so, you are not alone. I felt all of this and more in the first year of my lichen sclerosus journey. In this post, I discuss what motivated me to get a sex therapist after being diagnosed with lichen sclerosus. Then, I share how working with a sex therapist helped my physical and mental health.
In this guest post, Jen shares her story about living with lichen sclerosus and trauma. It is a reflective piece on the nature of trauma and how it impacts lichen sclerosus. If it feels safe and supportive to your journey, take a couple of minutes to read through this powerful and moving piece.
Today, I break from the diary-style entry blogs of my week-to-week experience with dilators. Instead, I focus more on the dynamic between my husband and me during this process, how he helped me, and I share a super intimate and vulnerable moment.
Today, I talk about my dilator journey for weeks 7 & 8. This post will be TMI, so if that’s not your thing, click out. For example, it will include discussions about oral sex, masturbation, lube, etc. In addition to highlighting the physical aspects of my journey, I document how working with dilators affected my mental health. I had a pretty big mental health breakthrough this week, and I can’t wait to share this with you.
In this post, I continue my dilator journey from weeks 5 and 6. I highlight the physical and mental aspects of the journey. I discuss some setbacks I experienced and how I dealt with those.
Today, I will continue my journey into weeks three and four. I also document how this journey impacted my mental health. Specifically, I highlight mental struggles and some wins throughout the two weeks. It is important to me to be transparent and open about my journey with you.
This post will be part of a four-part series on my journey with dilators. I will detail my experience each week, in a quasi-journal entry format. I am sharing my journey in the hopes that it will help you in your journey. This series will be a vulnerable and honest journaling of what I did and how I felt mentally on my dilator journey.
Without further ado, let me introduce you to our latest warrior. Anonymous is a beautiful and generous soul living in the UK. I first met her in the lichen sclerosus virtual support meetups. She was also so wise, compassionate, and full of empathy for others in the group.
One day, I received an email from anonymous. I opened up two beautiful poems on her experience with grief for The Grief Project. When I read her poetry, I cried. I was completely moved and taken aback, by her talent to convey such a challenging and complex experience as the grief that accompanies lichen sclerosus.
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