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TLLC Blog Posts

TLLC's blog is moving!

In January, 2023, TLLC partnered with Lichen Sclerosus Support Network (LSSN). This means my new 2023 blog posts will be published on LSSN’s page. For full details on what the partnership entails, watch this video.

Image of a wreath of pink and purple flowers amongst a cream background. In black, italic font, text reads: "The Grief Project: Poems by Gina".

The Grief Project: Poems by Gina

Gina is a fellow LS Warrior whom I had the pleasure of meeting (virtually) over a year ago at one of the Lichen Sclerosus Support Virtual Meetups. Her warmth radiated through the screen. She was such a beacon of light in uplifting others on the call and has always been incredibly honest and transparent about her lichen sclerosus journey. When she reached out to me to add her poetry to The Grief Project, I was overjoyed. When I read her words, my eyes filled with tears. I was deeply moved by her poetry; I felt her words in my body and soul. Gina has such an incredible talent for conveying complex experiences such as grief with LS through poetry.

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Cream background with a wreath of yellow and pink flowers on the bottom of the image. In the center, the title text reads "The Grief Project: Megan's Story" in black cursive.

The Grief Project: Megan’s Story

A few weeks ago I had the pleasure of (virtually) sitting down with a friend and fellow LS warrior, Megan to discuss her journey with Lichen Sclerosus and grief. We had this conversation interview style, and what follows is a transcription of our talk. Megan is an incredibly brave, intelligent, and strong LS warrior whom I have had the pleasure of getting to know over the last year. She’s come a long way on her difficult LS journey, and I’m so proud of her.

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I am often surprised that she captures what has been on my mind.”

Jaclyn manages to put into words many of the thoughts, feelings, fears (oh, so many fears), and questions, that come with a diagnosis of LS. She captures both the physical and often more importantly the mental health aspects of learning to live with LS. Her generosity in sharing her personal journey and speaking truthfully about LS provides much needed hope and perspective
Joanne

Reading her blogs has helped me deal with LS in every way – physically, emotionally, and mentally. -Maria

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